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What happens in the immunodeficiency clinic?

The immune system is the part of our body that protects us against infectious diseases caused by microorganisms, such as bacteria and viruses. Immunodeficiency is a very broad term that refers to any defect, big or small, in this system.

In preparation for the clinic, you may find reading this leaflet provided by the Primary immunodeficiency UK charity useful.

You might also like to read this letter and testimony from a patient, all about their individual experience.

For information about car parking please visit our 'getting here' page.  Allow plenty of time for finding a space at busy times and sufficient change for parking.

When you arrive at main reception, you will be directed to the outpatients department.  Once you have checked in a member of the team will call you for your appointment.  In the unusual circumstance that you have not been called and it is more than 30 minutes after your appointment time, do let the receptionist know.

If you are unable to attend your appointment please call the number on your appointment letter or the appointments office: 01782 676676.

Our clinics are located in the cancer centre due to availability of space.

One of our specialist doctors or nurses will first take the full details of your symptoms and how they have affected you.  A medical examination might be necessary, but you will always be offered a chaperone if you would like one.  

It is likely that you will have some blood tests.  There is a phlebotomy service based within the clinic.

Since these conditions tend to be complex, the appointments are necessarily thorough and long. Please allow 1-2 hours for your first appointment with us.

Please make sure you bring a list of your current medication.​

In the clinic we look after patients with a variety of immune deficiencies including Primary Immunodeficiency (PID).

These are a group of over 300 different conditions that affect how the body's immune system works.  People affected by PIDs have parts of their immune systems missing or not working. This leaves them with reduced or no natural defence against germs such as bacteria, fungi and viruses, which surround us every day.

The consequences are that people with PIDs get infections more often than is normal. They can take longer to get better when they have antibiotic treatment and the infections can keep coming back.

Susceptibility to infection is one of the most common symptoms of PIDs. Often PIDs are diagnosed early in a child's life. However, signs of immunodeficiency can also occur in older children, teenagers or adults.

Learn more about PIDs

A small proportion of patients may need regular immunoglobulin treatment, which can be provided either at home or at hospital.

Learn about treatments for PIDs

Watch a video about self-administration​

Hereditary Angioedema is a rare but potentially life-threatening inherited condition. HAE symptoms include episodes of oedema (swelling) in various body parts including the hands, feet, face and throat.  Other symptoms may include severe abdominal pain and vomiting.

Click here for more information

We support patient self-management of these attacks.

Frequently asked questions about stopping immunoglobulin infusions

www.cgdsociety.org
Chronic Granulomatous Disorder Society

www.eaaci.org
European Academy of Allergy and Clinical Immunology

www.haeuk.org
Hereditary Angioedema 

www.immunology.org
British Society for Immunology

www.piduk.org
Primary Immunodeficiency UK

www.ukpin.org.uk
UK Primary Immunodeficiency Network

www.ukpips.org.uk.
UK Patient Immune-deficiency Patient Support​

Coffee mornings

We hold regular coffee mornings for patients on regular treatment with our service.  This allows you to get together with other people on the same treatment, compare notes and ask questions.  Please ask more about this when you come to clinic or look at the notice board in the waiting area for the next date